but it also applies to being the partner of anyone, disease or not. After meeting Brian, I’ve come to realize that although CF is a serious condition, people living with it can: thrive and lead normal lives; maintain a positive outlook; be compliant with their treatments; and, incorporate exercise as part of their daily routine.EE: What advice would you give someone who is starting out in a relationship with someone with CF?MW: I would tell them that CF, or any other chronic illness, should not prevent them from getting to know these individuals. Their faith is deeper and their connection to everything that surrounds them is more profound than the rest.I’ve found that those living with chronic illnesses have a better outlook in life than most of us without. Their perspective of living life to the fullest and never taking anything for granted is contagious and inspiring. When I first met Brian, some people were concerned that I was starting a relationship with someone with a chronic illness.
Almost three years later, Marissa is now my very best friend, and the sharing the loss of my brother was only the first of several challenging and painful situations she has supported me through. I have always wondered, and not been able to ask, what it is like for friends and loved ones to be on the other side of living with CF?
I found myself comfortable and confident in asking Marissa if I could interview her about these questions to better understand what it is like, as a partner of someone with CF.
When I shared my interview questions with Erin Evans for review, Erin also had some great questions she wanted to ask as well.
Personally, I don't like to refer to it as a "condition".
CF is not a "condition", it's just part of who you are, like any of your other medical issues, I accept you as you are, imperfect or not.